Rheumatoid Arthritis Pain Is Complicated. Tracking Your Symptoms Can Help. 
 
Join ArthritisPower, a patient-centered research registry, to understand more about your RA.
 

ArthritisPower is a patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions like rheumatoid arthritis. 

Our goal is to provide patients with tools to track symptoms that matter to them — such as pain, fatigue, and sleep issues — as well as allow participants to participate in voluntary research studies around questions and issues that they care about.

Track Your Symptoms
 
Complete health assessments in the ArthritisPower mobile app. Do this weekly or monthly to see changes in your condition.
Join Research Studies
 
We'll email you research studies that you may be eligible to participate in. They're all voluntary.
Contribute to Research
 
By participating in research studies and completing health assessments, you're helping our researchers develop better treatments.

Copyright © 2020 CreakyJoints

How Does It Work?

FAQs

1. What conditions are included in the registry? 
2. Will ArthritisPower keep my information confidential?
Help Shape The Future of Arthritis
 
Join the ArthritisPower patient-centered research registry today.
We regularly collaborate with leading research institutions like Duke and Yale University to conduct arthritis-related research.  Our research studies are typically online surveys that ask you about certain aspects of living with arthritis.
Join Research Studies
SIGN UP
When we have a study that matches your diagnosis, medication, and other characteristics, we’ll send you an email invitation to participate. All studies are voluntary and not required.
Using the ArthritisPower app to take health assessments at least once every six months helps you to track your symptoms over time and discuss them with your doctor. 
Take ArthritisPower Assessments and Be Part of Our Long-Term Study
By participating in ArthritisPower over time, you will help researchers better understand arthritis patients.
SIGN UP

ArthritisPower was created by a 501(c)3 nonprofit Global Healthy Living Foundation, its patient community CreakyJoints, and researchers at the University of Alabama at Birmingham.

There are a few ways to participate in ArthritisPower.

Recent ArthritisPower Research Studies

57% of Arthritis Patients Have Tried Marijuana or CBD for Medical Reasons

CreakyJoints, the patient organization behind ArthritisPower, wanted to understand how our arthritis patient community perceives and uses medical marijuana and CBD, so we conducted a survey to find out more. In research presented at the 2019 Annual European Congress of Rheumatology (EULAR) meeting in Madrid, Spain, we gave 1,059 patients with arthritis a 77-item survey to delve deeper into their usage of marijuana and CBD. Read about our findings.

The Quality of Life of People Living with Psoriatic Arthritis

Some 203 psoriatic arthritis (PsA) patients in the ArthritisPower research registry participated in this study. Overall, the study found that adults with psoriatic arthritis (PsA) experienced high unemployment and a significant impact on their personal relationships. Learn more about what we found.

82% of People with Gout Think It’s Best Managed with Diet Changes

When researchers, including those from ArthritisPower, surveyed 178 people with gout about their knowledge of the condition, more than 80 percent of respondents said they believed gout is best managed by diet changes, such as limiting consumption of certain foods like red meat, organ meats, and seafood. Read more.

Learn more about ArthritisPower.

Currently our research includes the following conditions: Rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, psoriasis, osteoporosis/osteopenia/low bone mineral density, osteoarthritis (degenerative arthritis), fibromyalgia, gout, juvenile idiopathic arthritis, inflammatory bowel disease (e.g. Crohn’s disease, ulcerative colitis), lupus, scleroderma (systemic sclerosis), polymyalgia rheumatica, polymyositis, dermatomyositis, axial spondyloarthritis (axSpA), non-radiographic axSpA, D.I.S.H. diffuse idiopathic skeletal hyperostosis (D.I.S.H.) and Sjögren’s syndrome.

Yes, study-related records identifying ArthritisPower participants will be kept confidential and, to the extent permitted by applicable laws and/or regulations, will not be made publicly available.

When you have a chronic condition like rheumatoid arthritis, you may experience many symptoms that affect your daily living and disability. Your doctor needs to know about how your RA is impacting your everyday life. But RA symptoms can come and go — you may feel fine this week, but did poorly last week — and it can be challenging to monitor the big picture of your chronic illness over time. That’s where ArthritisPower comes in.

When you sign up for ArthritisPower, you can select different health assessments that matter to you, and choose how often you want to take them (say, weekly or monthly). When you have an upcoming doctor appointment, you can discuss your latest assessments and feel more informed. Examples of assessments you can take in ArthritisPower include:

  • General health (an overview of your RA disease activity)
  • Pain interference
  • Rheumatoid arthritis flare
  • Fatigue
  • Sleep disturbance

Why Track RA Symptoms?